February 12, 2009

Seems Like 40 Is The New 60 Around Here



Here is a carefree "us" kissing under some mistletoe last weekend at the botanical gardens here in Jena. I say carefree because we just learned yesterday that Mark has Celiac's disease. My poor guy. He has been having digestive issues for quite some time and coming to Germany made his symptoms go from bad to worse. Gluten in the food he's been eating has caused an autoimmune response in his body and then his body has attacked his own small intestines. It is quite serious and he must stop eating gluten immediately. Turns out he's had this all his life and there were many clues present which we never put together until very recently. He has suffered from strange blisters on sensitive skin areas for about the last 20 years, a distinct symptom of Celiac's, but one the doctors were never able to decipher. Drinking beer has always made him sick. He eats thousands of calories each day, but is always hungry and has lost 15 pounds since last summer. The disease has caused so much damage that his body cannot absorb nutrients and he is malnourished. He'll have to have injections of large amounts of vitamins for the next six months. The doctors here wanted to give him a colonoscopy and an endoscopic biopsy to take tissue samples, but he declined until we return to the states. Our health insurance here covers next to nothing and since those test results won't change the treatment plan, we've decided it's okay to wait. So we're going gluten-free. That means no wheat, spelt, rye, or barley, ingredients which are in just about everything, no beer, no bread, no bratwurst (gluten is used as a binding agent in sausage), and pretty much no processed food of any kind. Just rice and corn. This would have been inconvenient in the states, but it's almost a nightmare here trying to read ingredient labels in German! But we are relieved to finally have a diagnosis. He has not been feeling well for a long time but ignored his symptoms because my thyroid cancer kind of pushed to the forefront of our lives before we left. Seems like 40 is the new 60 around here with all of our health issues this past year. And of course the kids will have to be tested when we return; Celiac's is hereditary, but only a 5% chance. So if you know of good things to eat that are guaranteed gluten-free, feel free to pass the info our way. I'm searching the internet for new ways to cook and scouring the stores for ingredients that don't contain the offending grains. The kids and I won't let him do this alone, even if it means remembering to bring a banana for him to snack on while we eat at McDonald's!!

6 comments:

Mark said...

Thanks for the love Babe! That is a cute picture. I wanna kiss you as much today as I did when we were 17.

No the trees here aren't leafing out yet, that is one very infested tree,, perfect for a late winter kiss.

So bye to all that great German bread, beer and brat. Bummer, eh? Here I am in Gluten Heaven and I have to be a spectator.

And I want to add that the vague areas of "sensitive skin" where I get blisters are on my elbows, knees and lower back, not my,, well you know,, other areas of sensitive skin.

AngMomof3 said...

Ack! That bites!!! I'm glad you got to enjoy (at first taste) some of that great german bread before the official diagnosis...

My family is a bunch of wheat farmers. I couldn't imagine living gluten free. I do know that WSU is working on creating a gluten-free variety of wheat, though. Isn't that amazing?

Elbows, knees and lower back is bad enough... glad it's not on any "other" sensitive skin!

Wendy said...

hey. I've got quite a bit of knowledge on celiac disease, considering that my ex-, the one who lives in Texas...has celiac disease. I spent many months preparing home-cooked foods because nearly EVERYTHING in restaurants contains something non-digestible. Be careful of any sauces. All sorts of thickeners and preservatives are made of derivatives. Kristi, a really simple tip for you that you can do right now is to put whole oats in a blender and make your own flour. It works like a dream. I STILL do it and make beautiful banana pancakes and such. Garbanzo flour is also a great addition, especially if you guys like spicy, you can look up recipes for making falafel with the garbanzo flour and it's very yummy.

On another note, I'll probably be sending quite a large e-mail about your mail. For instance, what do you want to do about your tax returns? Have you planned for that? All of your forms are coming in...

Wendy said...

one last thing to consider. There are TONS of gluten-free (and tasty) products out on the market. One of my favorite brands is Namaste Foods. This company makes things like brownie mix, pizza crust mix, cake mix, etc.--not that any of these are essentials, but believe me, the person with celiac begins to CRAVE these, so it's cool that they have mixes out there. I don't know what the customs rules are for shipping such things between U.S. and Germany, but I'd be glad to send a care package. Just say the word.

Mark said...

We already filed an extension so we don't do taxes until we get back. Being out of country buys you three extra months to file w/o asking for an extension, but we filed for it anyway since it might not get done the day we get back!

Shawna said...

Bummer on the Celiac...

On another note, we received a super cool postcard and wanted to send one back so shoot me an address kay!